ALL YOU NEVER WANTED TO KNOW ABOUT GASTROPARESIS
Welcome to Friday the 13th. We’re treated to this wonderful experience not 1, but 2 months in a row.
In “honor” of this day, I bring to you a bit of the misery that is presently my life.
I’m around 5’ 4 ½ “ tall. Two weeks ago I weighed 111 pounds. I haven’t weighed that much in 10 years.
Today, when I went to Publix to buy 4 more tubs of Fage yogurt, I stepped on the scale and found that I’m now 108 pounds.
I hear the buzzing in the blog-o-sphere now: “What is her weight-loss secret?”
I can tell you what it is in 1, neon green, word:
PAIN
When diagnosed with gastroparsis, I’d never heard of the problem. It’s more common in people with diabetes or hypothyroid. Most of the time it’s idiopathic, a sciencey sounding word that means,
“We don’t know where the hell it came from.”
Wherever it came from, I wish it would stop vacationing in my stomach and GO HOME!
Only 12 years ago, I stepped on a scale and weighed almost 150. In an effort to chase away the fat cells, I began exercising 3 or more days a week. Several months later, I plateaued at 139. Self-employed, I worked 60 or more hours and often 7 days a week. Much of my sustenance came from fast food restaurants.
So, you might ask, when did all that change?
In late 2003. I was headed home after a meeting and stopped by the local Taco Bell to order a quesadilla and proceeded to eat the whole thing. That night, I thought my stomach was going to explode. The resulting expulsion of my dinner several hours later brought forth 2 questions
1. Why was I looking at the recognizable bits of dinner that should, by now, be nothing but slimy goo, and
2. Why was the pain of expelling it worse than childbirth?
Not knowing what else to do, I began drinking Ensure or Bouillon. Yes, I tried to eat other things, but unfortunately those were the only 2 “foods” I could keep down.
This went on for 2 months and, finally, I went to see my doctor. Unfortunately, she was no longer working there and they assigned me to one of those general practitioners from somewhere in the middle east that you dread being in the same room with. To break it down into an equation, this was his diagnosis:
Woman + pain = Histrionic
He told me to eat more fiber.
So, I consulted someone who had stomach issues. She pointed me to her gastroenterologist.
It took 3 months and a couple of tests to find that gastroparesis (paralyzed stomach) was the problem. I would make a list of the “NO, ABSOLUTELY NOT” foods, but you’d fall asleep in the middle of it. Basically, I can have baby food and low fat foods. In fact, the things I can eat are greatly outweighed by the things I can’t eat.
As a result of a very uncooperative stomach insisting that I not eat any more than ½ cup of food 5 times a day, I went from 139 (size 14) to 102 (size 2) in a year.
After more than a decade of managing this problem, why would it flare up again?
Over the past few years I’ve been adding more of the forbidden foods into my diet: Chocolate, fresh fruit, dried fruit, veggies other than cooked carrots, higher than 10% fat content, pastries, potato chips….to name just a few… gradually increasing from ½ to 1 cup portions every few hours.
How magnificent to bite into a juicy steak, enjoy a spoon full of luxuriously rich mashed potatoes made with butter and cream! How sinfully delightful to feel that velvet chocolaty goodness of a well-made dark chocolate cake with icing cuddle my tongue—and not get sick!
The cut the grass (southern for coup de grâce) happened on February 26, when I went out to eat with my best friend at Golden Corral. We spent 6 hours sitting, talking, munching and enjoying our ladies-night-out. Yes, I had to have that steak, 2 helpings of potatoes and more food in 6 hours than I usually eat in 2 days.
And my stomach was miserable for more than 2 days afterward.
I seemed to get better after the initial problem subsided. Then I had lunch the next week with another friend at a Mexican restaurant and, for the first time in 11 years, tasted the goodness that was refried beans.
By the way, the Fajita was delicious, too.
There’s a pain that starts in the sternum I can only describe as the scene in Alien where, for the first time, you see the creature tear through its host. That screaming pain moves to your ribs, pushing them outward and your waistline increases by 5 or more inches.
That was almost 2 weeks ago. I’ve been eating yogurt with honey, sucking on peppermints, and having the occasional piece of chocolate candy (which was a BIG mistake) ever since.
And, BTW, most of the time I feel like crap.
So…..the next time you see a woman standing on the Publix scale, cursing because she just can’t seem to gain weight, don’t wish the worst for her. You’ll be pleased to know she’s already experiencing it.
Sounds just awful. So sorry.
LikeLike
I have to laugh at stuff when I know it’s my own fault. Sort of like jumping in a river full of crocodiles hoping to get to the other side. 🙂
LikeLike
Sorry to hear this. I know from my own experience that when someone says they are in pain… Words cannot describe it adequately. I hope you get some relief soon.😷
LikeLike
At present, as long as I don’t eat I’m fine. Yogurt is, after all, nothing but weird milk. 🙂
LikeLiked by 1 person
What an unpleasant way to lose weight!! I hope you feel better soon!
LikeLiked by 1 person
Thanks. I’m not going to be eating steak for a while, that’s for certain. 🙂
LikeLike
Ugh! I’ve gone thru stomach issues, back in the beginning of Graves’ disease, but after RAI treatment they subsided, as did my migraines.
Our bodies can try to tell us something, but we are at the mercy of good doctors and medical techniques/treatments.
I hope you find medical help that can get to the root of the problem. It seems to be some form of autoimmune response causing the inflammation. Have you visited with an endocrinologist?
LikeLiked by 1 person
The problem is, there’s no known cure. The only thing that helps is to stay away from foods that hurt.
I didn’t mention in the post that fiber would’ve been the very WORST thing with which to assault my body. I wrote a letter to the medical center about their doctor’s incompetence and my anger at the fact that he’d refused to refer me to a specialist. I didn’t have insurance at the time, which meant I didn’t need his !%&#ing referral to find a specialist. You can imagine that the letter I wrote wasn’t kind.
I have a great endocrinologist. You have Graves, I have Hashimoto’s. Does it seem to you that more people have thyroid problems now than ever before?
I average going out to eat about once every 3 months. I think that twice in a month was just too much (as well as the amount of food).
LikeLiked by 1 person
Thyroid issues are rampant in my family. My sister, two first cousins, a niece, and possibly our brother suffer from it. (He refuses to go thru the gamut of tests, but he has all the symptoms.) Our grandmother also suffered.
In the beginning of the Graves I went thru the horrible, similar stomach issues you described. I was down to 98 pounds (I’m also 5’4.5″ tall), and ate like a bear, but I also LIVED in the bathroom. It took a Gynecologist referral to the Endocrinologist and then a trip to a Radiologist for an MRI. It was discovered that I had a pituitary adenoma. I was treated with medications to dissolve the small mass and went thru a series of two additional MRI’s to confirm tumor shrinkage. The last MRI concluded the mass had been fully dissolved.
It was shortly thereafter that I became pregnant, and after the birth of my second daughter I experienced the onslaught of stomach concerns all over again. My doctor discovered my thyroid levels were “off the charts” and with extreme weight loss and limb shaking I was on the verge of a thyroid storm. I was put on blood pressure meds, stabilized and given the radioactive iodine.
Currently I take the drug, Synthroid to supplement my body’s loss of thyroid function
LikeLiked by 1 person
Glad you found a good endocrinologist. 🙂
LikeLiked by 1 person
I had my share of food intolerance a while back with my falling-apart body (which led to cutting out said foods), but I can’t say I’ve had pain of Alien proportions. Ouch.
LikeLiked by 1 person
It wouldn’t be that bad if I just didn’t try to push the envelope. But the envelope is there. It HAS to be pushed. It’s in my nature. 🙂
LikeLiked by 1 person
This is the web site of an international organization and support group for those with digestive motility disorders; it includes how to find the sub-specialty physicians in each state. I’ve been stabile for a long time so I haven’t visited the web site recently, but I do have one of the motility disorders. Best wishes to you for successful management!
http://www.agmd-gimotility.org/index.htmhttp://www.agmd-gimotility.org/index.htm
LikeLiked by 1 person
Thanks for the link. 🙂
LikeLike
My pleasure! I don’t know why, but the link doesn’t work for me. You can scroll way down and the link with .org in it takes you to the website. ????
LikeLike
I ran into that, too. Fortunately, with my extra large screen I could see the same link was pasted twice. 🙂
LikeLiked by 1 person
Your post has made me extremely sad as I fear I have this and am undergoing my final test- gastricemptying scan. I am happy to know i am not alone in dealing with these horrid symptoms xx thank you
LikeLiked by 1 person
That was the confirming test for me over a decade ago. About 5 years later, I had an endoscopic test and my doctor found fluid still in my stomach. I hadn’t had anything to drink for hours and nothing but Ensure the week before the procedure. It reconfirmed the diagnosis.
You’ll get to the point where you can recognize the signs that your stomach isn’t happy and start settling in to a new norm. What do I miss the most (at this moment)? Pepperoni and sausage pizza with tons of veggies and extra cheese. 🙂
LikeLiked by 1 person
I am absolutely terrified. I have had only negative feedback about having this test. It is a rare one to have down here in Australia.
I hope I reach that point too because at the moment, it is unbearable.
Oh – I miss being able to eat big meals in general. I forced myself to tonight and am currently paying for it as my stomach has no idea how to digest it at all. It is so frustrating 😦
Thank you for being supportive x
LikeLike
Just when all these new yummy artisan ice creams are on promo sale in supermarkets! 😮
LikeLiked by 1 person
I wish I could say I learned my lesson, but I just finished watching a 1940’s movie on YouTube while eating cheddar cheese potato chips. I’m courting disaster here. 🙂
LikeLike